{"id":1217,"date":"2021-08-23T14:45:00","date_gmt":"2021-08-23T14:45:00","guid":{"rendered":"https:\/\/iteldigital.com\/medicalincs\/?p=1217"},"modified":"2026-05-30T15:27:52","modified_gmt":"2026-05-30T15:27:52","slug":"caring-for-patients-with-other-dystonia","status":"publish","type":"post","link":"https:\/\/iteldigital.com\/medicalincs\/?p=1217","title":{"rendered":"Caring for Patients with Other Dystonia"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"1217\" class=\"elementor elementor-1217\" data-elementor-post-type=\"post\">\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-794ba69 e-flex e-con-boxed e-con e-parent\" data-id=\"794ba69\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-6e581de e-con-full e-flex e-con e-child\" data-id=\"6e581de\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\">\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-4a0db67 elementor-widget elementor-widget-text-editor\" data-id=\"4a0db67\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>From the Frontline<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-749f4de elementor-widget elementor-widget-text-editor\" data-id=\"749f4de\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Issue 4<br \/>September 07, 2021<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-30d0020 elementor-widget elementor-widget-text-editor\" data-id=\"30d0020\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Caring for Pediatric Patients with Cystic Fibrosis with a Digestive Manifestation (ICD E84. 19)<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-b3ff191 elementor-position-left elementor-vertical-align-middle elementor-widget elementor-widget-image-box\" data-id=\"b3ff191\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"image-box.default\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><figure class=\"elementor-image-box-img\"><img decoding=\"async\" width=\"105\" height=\"100\" src=\"https:\/\/iteldigital.com\/medicalincs\/wp-content\/uploads\/2021\/08\/Rashida-105x100-1.jpg\" class=\"attachment-full size-full wp-image-1230\" alt=\"\" \/><\/figure><div class=\"elementor-image-box-content\"><p class=\"elementor-image-box-description\"><strong>Author:<\/strong> Rashida Humphrey-Wall, BS, RN, MSN, DNP, Lead REM Clinical Care Coordinator<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-1fd7642 e-con-full e-flex e-con e-child\" data-id=\"1fd7642\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\">\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-15fc1df elementor-widget elementor-widget-image\" data-id=\"15fc1df\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"600\" height=\"400\" src=\"https:\/\/iteldigital.com\/medicalincs\/wp-content\/uploads\/2021\/08\/Issue4-1-600x400-1.jpg\" class=\"attachment-large size-large wp-image-1228\" alt=\"\" srcset=\"https:\/\/iteldigital.com\/medicalincs\/wp-content\/uploads\/2021\/08\/Issue4-1-600x400-1.jpg 600w, https:\/\/iteldigital.com\/medicalincs\/wp-content\/uploads\/2021\/08\/Issue4-1-600x400-1-300x200.jpg 300w\" sizes=\"(max-width: 600px) 100vw, 600px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-2dc5387 e-flex e-con-boxed e-con e-parent\" data-id=\"2dc5387\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-28701dc elementor-widget elementor-widget-text-editor\" data-id=\"28701dc\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Disease Overview:<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-32f069f elementor-widget elementor-widget-text-editor\" data-id=\"32f069f\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Cystic Fibrosis (CF) is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time and may also cause severe digestive issues along with other organ damage (usually diagnosed by two years of age). There is no cure for CF, but the life expectancy has increased greatly by almost 20 years. There are currently more adults with CF than children and newborns with CF are now expected to live to be at least 40 years of age, if not greater.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-9f99bdc e-flex e-con-boxed e-con e-parent\" data-id=\"9f99bdc\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-09ced1f e-con-full e-flex e-con e-child\" data-id=\"09ced1f\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\">\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-af4d1c3 elementor-widget elementor-widget-text-editor\" data-id=\"af4d1c3\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p><a href=\"https:\/\/www.nhlbi.nih.gov\/health\/cystic-fibrosis\" target=\"_blank\" rel=\"nofollow noopener\">Figure 1: Systems affected by CF<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-e4241b8 elementor-widget elementor-widget-text-editor\" data-id=\"e4241b8\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Symptoms &amp; Causes:<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-a51350f elementor-widget elementor-widget-text-editor\" data-id=\"a51350f\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>People with Cystic Fibrosis (90%) have sticky mucus that blocks ducts in the pancreas and prevents enzymes from reaching the small intestine to digest food. Undigested food in the intestines can cause pain, slow weight gain\/growth, cramping, gas, and either loose, greasy, floating stools or constipation and blockages. Cystic fibrosis is an inherited disease caused by mutations in a gene called the cystic fibrosis transmembrane conductance regulator (CFTR) gene.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-a98cac0 elementor-widget elementor-widget-text-editor\" data-id=\"a98cac0\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<ul><li>Chronic coughing<\/li><li>Recurring chest colds<\/li><li>Very salty-tasting skin<\/li><li>Wheezing or shortness of breath<\/li><li>Frequent sinus infections<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-4f2854e e-con-full e-flex e-con e-child\" data-id=\"4f2854e\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\">\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-72fe380 elementor-widget elementor-widget-image\" data-id=\"72fe380\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"300\" height=\"214\" src=\"https:\/\/iteldigital.com\/medicalincs\/wp-content\/uploads\/2021\/08\/From_the_Frontline_Issue4_Cystic_Fibrosis_Rashida_20210905_Final-1_Page_1_Image_0002-300x214-1.jpg\" class=\"attachment-large size-large wp-image-1229\" alt=\"\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-2041b1c e-flex e-con-boxed e-con e-parent\" data-id=\"2041b1c\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-f4b9243 elementor-widget elementor-widget-text-editor\" data-id=\"f4b9243\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>What\u2019s Working:<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-e28ebeb elementor-widget elementor-widget-text-editor\" data-id=\"e28ebeb\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>One approach is called pancreatic enzyme replacement therapy. There are also medications to reduce stomach acid, helping the pancreatic enzymes to work better. Supplements of vitamins A, D, E, and K to replace the fat-soluble vitamins that CF patients have trouble absorbing. There are surgical measures, but ideally proactive and preventative practices are best if effective.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-36fa1f6 elementor-widget elementor-widget-text-editor\" data-id=\"36fa1f6\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Condition Management Challenges:<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-4bb56c7 elementor-widget elementor-widget-text-editor\" data-id=\"4bb56c7\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Compliance is very important with CF no matter the treatment route or age of the patient. Staying active is very important and hygiene which in turn lessens some levels of germ exposures. With children especially, you must get creative with medication\/supplement administration and breathing treatment administration\/oxygen use if needed. Overall, this patients with CF can do everything those without CF can do when well controlled. The barriers presented by Covid-19 are no different than those for other medically fragile or compromised patients. In a way being \u201cquarantined\u201d and seen virtually has been beneficial to this population\u2019s respiratory health safety especially during respiratory season.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-e838ec7 elementor-widget elementor-widget-text-editor\" data-id=\"e838ec7\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Care Management Opportunities:<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-6a7c1b3 elementor-widget elementor-widget-text-editor\" data-id=\"6a7c1b3\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Care management is beneficial for patients with CF especially because of the multi-organ system involvement that can possibly lead to organ transplants, bowel obstructions, motility issues, bacterial overgrowth in organ systems (i.e., the intestine due to antibiotic overuse), GERD, frequent absences from school\/work etc. These patients see many specialists and require daily management of symptoms and intermittent exacerbations\/frequent infections. Care management resources are beneficial across the spectrum from medical\/supply support to physical, emotional\/mental health support.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-5579ec1 elementor-widget elementor-widget-text-editor\" data-id=\"5579ec1\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Resources:<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-1343f40 elementor-widget elementor-widget-text-editor\" data-id=\"1343f40\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>The REM resources can be utilized by this population of patients; The Arc of PG is a helpful resource, and The CF Foundation has a DC Metro Area Chapter and a Maryland Chapter that are both very active and offer supports from research to activities and nutrition plans; there are even supports to help with day to day living and useful tips for parents raising children with CF. Children\u2019s National Medical Center treats pediatric CF patients and Johns Hopkins has an extensive CF Clinic\/Team Equipment Professionals<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-e6a170d elementor-widget elementor-widget-text-editor\" data-id=\"e6a170d\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<ul><li>The Arc of PG\u00a0is a helpful resource<\/li><li>The CF Foundation\u00a0has a DC Metro Area Chapter and a Maryland Chapter that are both very active and offers support from research to activities and nutrition plans; there are even supports to help with day to day living and useful tips for parents raising children with CF.<\/li><li>Children\u2019s National Medical Center\u00a0treats pediatric CF patients<\/li><li>Johns Hopkins\u00a0has an extensive CF Clinic\/Team Equipment Professionals.<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-2c0e6ff elementor-widget elementor-widget-text-editor\" data-id=\"2c0e6ff\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>ABOUT FROM THE FRONTLINE<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-b42339f elementor-widget elementor-widget-text-editor\" data-id=\"b42339f\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>From the Frontline is a series of digital issues developed by\u00a0<strong><span style=\"color: #44b0e0;\">Medicalincs<\/span><\/strong>\u00a0Clinical Providers &amp; Care Coordinators. The topics discussed are unique to the patient population served; and does not include any confidential information. Our experts will be sharing their insights based on their frontline experience in coordinating care across the care continuum. By sharing our knowledge, we promote the\u00a0<strong><span style=\"color: #44b0e0;\">Medicalincs<\/span><\/strong>\u2019 mission of breaking down healthcare management silos; to sustain systems, that save lives!<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-7579952 elementor-widget elementor-widget-text-editor\" data-id=\"7579952\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>ABOUT MEDICALINCS<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div data-ka-cursor-size=\"1\" class=\"elementor-element elementor-element-cc5c4a1 elementor-widget elementor-widget-text-editor\" data-id=\"cc5c4a1\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;kng_cursor_interaction&quot;:&quot;default&quot;,&quot;kng_cursor_magnetic&quot;:&quot;none&quot;,&quot;kng_cursor_size_multiplier&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1,&quot;sizes&quot;:[]}}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p><strong><span style=\"color: #44b0e0;\">Medicalincs<\/span><\/strong> is a specialized healthcare advisory and management services firm that supports commercial and government health organizations.<\/p><p>Learn More: <a href=\"https:\/\/iteldigital.com\/medicalincs\/\"><span style=\"color: #44b0e0;\">medicalincs.com<\/span><\/a><\/p><p>Download PDF Version: <a href=\"https:\/\/www.medicalincs.com\/wp-content\/uploads\/2024\/03\/From_the_Frontline_Issue4_Cystic_Fibrosis_Rashida_20210905_Final-1.pdf\" target=\"_blank\" rel=\"nofollow noopener\">From_the_Frontline_Issue4_Cystic_Fibrosis_Rashida_20210905_Final (1)<\/a><\/p><p>1_08_23_MAnderson_Dystonia (1)<\/p><p>This entry was posted in <a href=\"https:\/\/iteldigital.com\/medicalincs\/?page_id=682\">Uncategorized<\/a>. Bookmark the <a href=\"https:\/\/iteldigital.com\/medicalincs\/?p=1217\">permalink<\/a>.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>From the Frontline Issue 3 August 23, 2021 Caring for Patients with Other Dystonia (ICD G24.8) Author: Mekea Anderson, LCSW-C, CCM, Lead REM Clinical Care Coordinator Disease Overview: Dystonia is a neurological disorder that affects movement<\/p>\n","protected":false},"author":1,"featured_media":1220,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_eb_attr":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-1217","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Caring for Patients with Other Dystonia - 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